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Teen denied kidney transplant because she’s not vaccinated for COVID, say parents

Appearing on “Fox & Friends Weekend” on Saturday morning to discuss the dire medical dilemma their family is facing, the parents of a teenage girl who is not vaccinated against COVID-19 revealed that their daughter has been unable to move forward with the kidney transplant she needs at Duke University Hospital in Durham, North Carolina. 

Chrissy Hicks, the mom of 14-year-old Yulia Hicks, recounted her exchange about the issue with a medical official.

“I said, ‘So basically you’re telling us if she does not get the vaccine, then she’s not getting a transplant,'” Chrissy Hicks said. “And [the medical employee] said, ‘Yes, that is the one thing that is holding us up.’”

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Chrissy and Lee Hicks of North Carolina adopted their daughter Yulia from Ukraine nearly two years ago. 

The couple has eight biological children and three who are adopted, the program noted.

Yulia Hicks, a 14-year-old girl, reportedly has been denied a kidney transplant by a hospital because she is unvaccinated for COVID-19.
(Fox News)

The girl suffers from a rare degenerative kidney condition known as Senior Loken Syndrome, which requires a transplant, according to reports. 

Though she is not vaccinated against COVID, she has had the coronavirus — so the parents believe she’s protected by natural immunities.

Dad Lee Hicks said on Saturday morning, “We’ve been up front the entire time we’ve been seen at Duke, for the last two years, that we were not comfortable with the vaccine — with the COVID-19 vaccine. And so they knew all along that we were not comfortable with this.”

Though a 14-year-old girl is not vaccinated against COVID-19, she has had the coronavirus — so her parents in North Carolina are arguing their daughter is protected by natural immunities and should be able to move forward with a kidney transplant. The parents appeared on “Fox and Friends Weekend.”
(REUTERS/Emily Elconin)

The dad added, “And it wasn’t a requirement. It was … a recommendation, according to [the doctors] at first — until the very end.”

“They knew all along that we were not comfortable” with the COVID-19 vaccine, the parents said.

Lee Hicks said that their daughter received a “nine-hour [medical] workup” in October.

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“And that’s when they [the doctors and hospital officials] decided or told us that this was going to be a highly recommended-slash-requirement for her to get a vaccine before she would get the transplant.” 

He added, “So the phone call … That’s when [the official] said it’s not a requirement, it’s [a] recommendation, but she cannot get the transplant without the vaccine.”

Health officials “said it’s not a requirement, it’s [a] recommendation, but she cannot get the transplant without the vaccine.”

Chrissy Hicks also said on “Fox & Friends Weekend,” “We have retained a lawyer … to help us fight Duke [Hospital].”

She added, “But we don’t want Yulia’s life caught up with the litigation. We’re hoping that a medical center can step forward and say, ‘Come here, we’ll give you the transplant without the vaccination.'”

The parents of Yulia Hicks, a 14-year-old girl, appeared on “Fox and Friends Weekend” on Saturday to discuss their daughter’s case. 
(Fox News)

The parents have set up a website for their daughter, they said — YuliaGrace.com.

“If there’s a medical center out there that will take [our daughter] as a patient, we would love for them to reach out to us,” Chrissy Hicks added. 

The mom also said, “We have 11 children. So it’s not really financially accessible for us to go on our own out of state to [get] the surgery.” 

“Hicks, who is originally from Ukraine, already had COVID and has recovered.”

Duke Children’s Hospital & Health Center, it notes on its website, is ranked among the top children’s hospitals nationally in nine specialties by U.S. News & World Report; it provides care for thousands of pediatric patients every year.

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Fox News Digital reached out to the hospital system on Saturday. 

Duke Health officials shared the following comment.

“Our hearts go out to all families coping with the serious illness of a loved one, and we are committed to making organ transplant accessible to as many eligible patients as possible,” the officials said. 

“To protect patient privacy, we cannot comment on individual cases.”

“We have provided more than 10,000 organ transplants since 1965,” they continued. “Eligibility for organ transplant is a complex medical determination informed by many health factors to ensure the best outcomes. These determinations are made in consultation with families and medical professionals and follow the latest medical evidence and regulatory guidelines that all transplant centers must follow.”

Duke Health said further, “To protect patient privacy, we cannot comment on individual cases.”

Yulia Hicks, a 14-year-old girl, was denied a kidney transplant because she was unvaccinated for Covid-19.
(Fox News)

Alex Berenson, a former New York Times investigative reporter, shared on his Substack this past Wednesday that the 14-year-old girl was refused a kidney transplant at Duke University Hospital because she was not vaccinated for COVID-19, as Outkick reported.

Outkick noted in its article that “according to Berenson, Yulia Hicks would need to get the vaccine before the hospital would perform her surgery. Hicks, who is originally from Ukraine, already had COVID and has recovered.” Berenson spoke to the girl’s parents. 

“Yes, it is strongly recommended all patients on the transplant list be fully vaccinated prior to transplantation.”

Many hospital systems around the country either recommend or require that patients on transplant lists be fully vaccinated prior to transplantation. 

The University of California San Francisco health system, for instance, contains “patient education” information that shares that guidance. 

“Yes, it is strongly recommended all patients on the transplant list be fully vaccinated prior to transplantation,” the site says. 

Human kidneys are shown in a cross-section view. “We encourage transplant recipients to get the COVID-19 vaccine when possible,” says one hospital. 
(iStock)

It adds, “Once a person is immunosuppressed at the time of transplant, response to a vaccine will be less robust than before.”

That site also says, “We strongly encourage that all eligible family and household members living with transplant recipients be vaccinated, including booster doses. Transplant recipients are likely to have a suboptimal response to the vaccine, so the best way for all close contacts to protect them is to be fully vaccinated.”

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In another example, the University of Maryland Medical Center in Baltimore, Maryland, says on its website that it “understands that transplant patients — both those already transplanted and those awaiting one — have specific questions related to the COVID-19 vaccine.”

It shares the following FAQ: “Should transplant patients get vaccinated?”

Its answer: “Yes. We encourage transplant recipients to get the COVID-19 vaccine when possible.”

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Brigham and Women’s Hospital in Massachusetts shares this note on its website: “Like most other transplant programs across the country, the COVID-19 vaccine is one of several vaccines and lifestyle behaviors that are required for patients awaiting solid organ transplant.”

It adds, “Transplant candidates must also receive the seasonal influenza and hepatitis B vaccines, follow other healthy behaviors, and demonstrate they can commit to taking the required medications following transplant.”

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North Carolina family of unvaccinated 14-year-old search for a medical center for kidney transplant

A North Carolina family is appealing for help after their adopted 14-year-old daughter was refused a kidney transplant by Duke University hospital because she was not vaccinated against COVID-19.

Yulia Hicks was taken in by Lee and Chrissy Hicks in January 2021 from Ukraine. They knew she had a rare genetic kidney condition, Senior Loken Syndrome, which would eventually mean she required a transplant.

On November 11, however, they were told she was not eligible for Duke’s waiting list because she was not vaccinated against COVID.

‘There’s no sympathy whatsoever from any of them,’ said Chrissy Hicks.

‘It’s just strong arming us: give her the vaccine, and you’ll get the transplant.’

She said they had contacted a lawyer, but ‘can’t have her life hanging in the balance with litigation’ – and were seeking an alternative medical center. 

The Hickses said Yulia had been infected previously, yet the hospital said that was not sufficient, and CDC guidelines require vaccinations for transplant patients.

‘They said the CDC recommendation had been updated at the end of October, and they had to go by the recommendation, and if she didn’t get the vaccine she wouldn’t be getting a transplant at Duke,’ said Chrissy Hicks, speaking to Tucker Carlson on Friday night.

Chrissy Hicks, mother of 14-year-old Yulia, appeared on Tucker Carlson’s Fox News show on Friday night to appeal for help

‘We’ve been dealing with these doctors from Duke for at least two years, because our dialysis goes through Duke as well,’ she explained.

‘We do it at home for Yulia.

‘But the two doctors who denied us because of the COVID vaccine, we saw them for an eight-hour workup, and that’s when they told us it was going to be required.

‘Then we kind of pushed back a little bit.

‘They put her in front of the committee on November 10th.

‘She was rejected solely because of the vaccine that’s when we decided to do a conference call and get actual evidence of them telling us this.’

Carlson called the hospital’s decision ‘obviously unreasonable and viciously cruel.’

Chrissy Hicks recorded the phone call, in which the hospital explained why Yulia was being denied the transplant.

‘I can’t require you to do anything,’ a woman says. ‘I can recommend these things. 

‘But if you don’t follow our recommendations then Yulia can’t be a transplant candidate here.

‘Based on number five, which is persistent non-adherence to medical dialysis treatment or medical recommendations, and also based on number 10 – which is medical risk factors that make the surgery unsafe.

‘And being unvaccinated to the CDC recommended vaccinations, based on her age, is part of that.’

Yulia Hicks, left, is a 14-year-old rescued orphan from Ukraine. She has been denied a life-saving kidney transplant because her parents will not have her vaccinated

Yulia Hicks was adopted in January 2021 by Lee and Chrissy Hicks, joining their large family

When the Hickses, devout Roman Catholics who have 11 children – three of them adopted – argued that Yulia had already had COVID and so was protected, the hospital staff pushed back.

‘The virus has continued to mutate,’ a man tells them.

‘So the natural immunity is not as good as if you had natural immunity, plus vaccination.’

Chrissy Hicks told Carlson that the hospital staff were not sympathetic, and had not even expressed condolences at not being able to help Yulia.

When the Hickses, devout Roman Catholics who have 11 children – three of them adopted – argued that Yulia had already had COVID and so was protected, the hospital staff pushed back

The mother of 11 said they hoped that another medical center may agree to help Yulia

Carlson said it was ‘so evil, it’s hard to digest it.’

The North Carolina mother said they have retained a lawyer, but in the meantime are hoping ‘that a medical center will come forward and let us know they will perform the transplant without the vaccine.’

‘We have retained a lawyer. Mike Yoder is his name,’ she said.

‘We can’t have her life hanging in the balance with litigation.

‘So we’re hoping that going on your show will give us exposure that a medical center will come forward and let us know they will perform the transplant without the vaccine.

‘We would love for them to reach out to us.

‘We’ve created a website, yuliagrace.com, contact us there, if there’s medical center that will help us.

‘We’ve also created – we have 11 children in our family. We aren’t financially able to go out of state to do this. Go to giftsendgo.com.

‘We’ve had an outpouring of help already. We are so grateful for people who have stepped forward,’ she said.

‘This comes down to: this is bigger than Yulia, so many families in the situation as Yulia, and we want to help other families.

‘There’s been a line drawn in the sand.

‘If we don’t stand up now for our medical freedoms, we don’t won’t be able to stand up soon.’

Yulia’s case is not isolated.

Earlier this year, a 31-year-old Boston man, DJ Ferguson, was denied a heart transplant because he refused to be vaccinated against COVID.

Several weeks later a North Carolina man, Chad Carswell, 38, said he would rather die than be forced to get the COVID jab to receive the kidney transplant he needed.

Atrium Health Wake Forest Baptist, the hospital where Carswell was hoping to receive his transplant, declined to comment on his case but a spokeswoman said the hospital’s vaccine policy is meant to protect transplant patients, who are at high risk for severe illness from COVID. 

Last year, both Cleveland Clinic and University of Colorado hospitals refused to perform organ transplants for recipients who hadn’t been vaccinated.

Individual centers establish their own policies, but there are some common practices. Hospitals will typically require transplant candidates to abstain from smoking, and transplant recipients generally have to go through psychosocial evaluations. 

They often have to be vaccinated against hepatitis B, commit to getting annual flu shots, and show they’re immune to measles. 

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Former NBA guard, Knicks star Nate Robinson battling kidney failure

Three-time NBA slam dunk champion and former guard Nate Robinson has announced he is battling kidney failure.

“I am currently undergoing treatment for Renal Kidney Failure and have been privately dealing with it for the last four years,” Robinson said through a statement Saturday evening.

Robinson, who spent the first five years of his career with the Knicks, said the reason for coming public with his battle was to shine a light on the disease.

“I’m sharing this now because I want to be the voice for all those who are having trouble speaking about this illness and come together for a greater cause – our health,” he added.

Known for his short stature on the court, the 5-9 University of Washington graduate, said he was never one to speak out. But he hopes to lead a united fight over kidney failure.

“I was never a vocal leader on the court,” Robinson admitted. “I preferred to lead by example, but now it’s time for me to speak up and help all those affected by or dealing with Kidney Disease.”

Robinson hopes his announcement on Saturday will bring awareness to the disease.
AFP via Getty Images
Nate Robinson #2 of the New York Knicks attempts a dunk during the Sprite Slam Dunk Contest on All-Star Saturday Night.
Getty Images

Robinson, 38, also expressed his gratitude for the medical care that he has been receiving over the last four years. “I am grateful for the care I’ve received and continue to receive during this process and hope through this announcement that I can help others like me.

Robinson holds the league record with three NBA Slam Dunk Contest titles, the last coming in 2010.

He suited up for eight teams over the course of his 11 seasons and last appeared in the NBA during the 2015-16 season, where he played two games for the New Orleans Pelicans.

After his basketball career, Robinson tested out boxing, making his professional debut against Jake Paul in an undercard bout for Mike Tyson vs Roy Jones Jr. Paul won the fight in a second-round knock-out.



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Ramiro Gonzales: Texas death row inmate is seeking a 30-day reprieve to donate a kidney. A court just stayed his execution for another reason

“Applicant has also presented at least a prima facie showing that testimony of recidivism rates (Dr. Edward) Gripon gave at trial were false and that that false testimony could have affected the jury’s answer to the future dangerousness question at punishment,” the Texas Court of Appeals wrote in its order.

The judges on Monday sent the case back to the trial court to review the merits of the claim. Two other claims were denied review.

CNN reached out to Gripon for comment and did not immediately hear back.

Gonzales’ execution had been scheduled for Wednesday.

A day before filing their motion, Gonzales’ attorneys had asked for an execution reprieve in a June 29 letter to Gov. Greg Abbott, writing in part that Gonzales’ request to donate an organ to a stranger was “in keeping with his efforts to atone for his crimes.”

Since then, at least two “preliminarily compatible” kidney recipients have been identified, including a cancer survivor in Bellingham, Washington, with the same rare blood type as Gonzales who has spent four years on dialysis “hoping for a lifesaving kidney transplant,” the inmate’s lawyers wrote Monday to the governor in a letter they shared with CNN.

“It seems almost impossible, but God moves in mysterious ways,” wrote the potential recipient, Judy Frith, in a letter Sunday to Abbott that Gonzales’ attorneys submitted with their own. “Whether or not Mr. Gonzales could donate to me, I cannot emphasize enough what a precious gift you would be giving someone if you allowed Mr. Gonzales the opportunity to donate his kidney.”

CNN has reached out to the governor’s office for comment.

The Texas Department of Criminal Justice, which let Gonzales get evaluated for the organ donation, has objected to Gonzales’ donation efforts because of his impending execution date, his lawyers wrote.

‘He still wants to save a life’

Gonzales initially sought to donate his kidney to a member of a Jewish congregation in Maryland whom he’d learned about in correspondence with its faith leader. But his rare blood type meant he was not a match. Since then, he has sought to make an altruistic kidney donation, that is, to donate his kidney without a known or intended recipient.

However, he was deemed ineligible under the state criminal justice department’s health care policy, a department spokesperson confirmed July 3 to CNN. The agency does not allow an altruistic kidney donation because it could introduce an “‘uncertain timeline, thereby possibly interfering with the court-ordered execution date'” and does not guarantee coverage of the costs, it told Gonzales’ attorneys, they said in a statement.

“He still wants to save a life,” Cantor Michael Zoosman, the ordained Jewish clergyman whose letters with Gonzales first catalyzed the inmate’s desire to donate a kidney, told CNN. “And Texas is denying him that.”

Gonzales’ attorneys had also asked the Texas Board of Pardons and Paroles to recommend that the governor commute their client’s sentence to life in prison, their statement said. Alternately, they requested a 180-day reprieve to complete a potential kidney donation.

But on Monday, the board voted against the request, refusing to recommend a commutation or a 180-day reprieve, according to the results of the vote shared by the board.

Gonzales ‘very eager’ to make donation

Gonzales was convicted in 2006 for capital murder in Townsend’s killing. Gonzales, who was 18 at the time, was looking to get drugs one day in January 2001 from Townsend’s boyfriend, who was his drug supplier, according to a court of appeals opinion from 2009.
When he called, Townsend answered the phone and told Gonzales her boyfriend was at work. Gonzales then went to the home “in order to steal cocaine,” stole money, tied Townsend’s hands and feet and kidnapped her, the records state. Gonzales then drove Townsend to a location near his family’s ranch, where he sexually assaulted and fatally shot her.

In October 2002, sitting in a county jail waiting to be taken to prison on an unrelated matter, Gonzales led authorities to her body and eventually confessed to Townsend’s killing, records show.

Since Gonzales and Zoosman began corresponding in January 2021, the inmate has “never made excuses for what he’d done,” Zoosman, a federal hospital chaplain and founder of L’chaim! Jews Against the Death Penalty, told CNN.

Gonzales first got the notion to donate a kidney when Zoosman mentioned someone in his congregation needed a donated kidney, Zoosman told CNN.

“I just mentioned it offhand in a letter to him … and he jumped on it,” Zoosman said, adding Gonzales was “very eager” and even wrote a letter to the person who needed the kidney.

“It was something he wanted to do to make expiation for the life he had taken,” Zoosman said.

Rare blood type makes Gonzales an ‘excellent match’

Gonzales has “actively sought” to be evaluated for organ donation since that time, his attorneys, Thea Posel and Raoul Schonemann of the University of Texas at Austin’s Capital Punishment Clinic, said in a statement last week to CNN.

The state criminal justice department this year allowed him to be evaluated, lawyers said in their letter to the governor, by the University of Texas Medical Branch at Galveston, where Gonzales was determined an “excellent candidate” for donation. However, Gonzales’ rare B blood type meant he was not a match for the member of Zoosman’s congregation.

“But that didn’t stop Ramiro,” Zoosman said. “On his own volition, he sought through his legal team to find another way to do it, to become an altruistic kidney donor.”

The medical center told Gonzales’ attorneys his rare blood type would make him “an excellent match for persons who have been on UTMB’s waiting list for close to 10 years because of the same rare B blood type,” according to the attorneys’ statement. The medical center — which declined to comment for this story, citing federal medical privacy law — assured Gonzales’ team in March the donation process could be completed within a month, the attorneys said.

In recent weeks, Gonzales’ attorneys repeatedly have asked the state criminal justice department to reconsider its position on altruistic donations, Posel and Schonemann’s statement said. The department has denied the requests, they noted.

It remains to be seen if the identification of two potential recipients will prompt the state criminal justice department to alter course or will impact the governor’s decision-making. One of the possible recipients hopes it does, whether the precious organ goes to her or someone else in need.

Frith knew she “had to be prepared for a long wait for a rare kidney” because of her Type B blood, she wrote in her letter to Abbott shared by Gonzales’ attorneys. She was shocked to learn Gonzales had a matching blood type.

“Imagine a potential recipient who may have been waiting 6 years or more for an elusive Type B kidney, feeling sicker and more hopeless with each passing day,” she said. “You have the ability to save that person’s life by allowing Mr. Gonzales to donate.”

‘He never expected it to lead to his clemency’

Gonzales has other litigation still pending before the courts: In one case, he sought to have the state criminal justice department let his spiritual adviser — who is not Zoosman — lay a hand on his chest, hold his hand and pray audibly at the time of his execution.

This request had previously been denied, but a federal judge in a preliminary injunction this month ruled the state may only execute Gonzales on Wednesday if it allowed this, court documents show.

But while those legal proceedings might be efforts to halt or delay Gonzales’ execution, Zoosman strongly believes the inmate’s attempt to become a kidney donor is not.

“Never in his correspondence with me, did he indicate that he felt that this would be a way out or a way to save his life. He never expected it to lead to his clemency,” Zoosman said. In fact, per Zoosman, Gonzales didn’t want to reveal publicly he was seeking to donate a kidney. He only decided to, the chaplain said, because his request was denied.

“There’s been a lot of discussion in the press lately about who is pro-life and who is not pro-life,” Zoosman said, a reference to the ongoing fights over abortion rights following the US Supreme Court’s decision to overturn Roe v. Wade. “And of course, that’s another issue.

“But I can say this: I cannot fathom a more pro-death stance than a state that not only engages in state-sponsored murder of defenseless human beings,” he added, “but one that prevents those in line for that murder from donating their organs to save others’ lives.”

CNN’s Steve Almasy and Raja Razek contributed to this report.

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Ingenious Technique Leads to Kids Having Kidney Transplants Without Immune Suppression

Organ transplants can quite literally save lives, but they also come with strings attached – often including a lifetime of immunosuppression drug treatments required to keep the immune system in check, lest it reject the transplanted organ as a foreign invader.

 

Now scientists are reporting on three successful kidney organ transplants, carried out in children in California, without the need for immune suppression. The transplants used a new method that minimizes the risk of the new kidney getting rejected.

This means freedom from immunosuppressants and the associated side effects, which aren’t always pleasant (and include an increased risk of cancers and diabetes). It also reduces the chance of a second transplant being required due to rejection of the first one.

“Safely freeing patients from lifelong immunosuppression after a kidney transplant is possible,” says Alice Bertaina, an associate professor of pediatrics at Stanford University in California.

The innovative technique works by safely transplanting the donor’s immune system into the patient – via stem cells from bone marrow – before the kidney also moves over: dual immune/solid organ transplant or DISOT. This has been tried before, but with a limited amount of success.

Here, an extra process was added. The researchers performed an alpha-beta T cell and CD19 B-cell depletion, which meant removing the types of immune cells that cause graft-versus-host disease or GVHD – a potentially lethal complication that has been at risk of developing when similar techniques have been used in the past.

 

With a reduced threat of GVHD, the process was much safer. The removal of the alpha-beta T cells is relatively ‘gentle’, making it suitable for medically vulnerable children, and it enables genetically half-matched transplants (from a parent). The removed cells recover naturally in the patient in 60-90 days, building up the immune system again.

Other tweaks were made, including a reduction in the toxicity of the chemotherapy and radiation treatment required before the transplant. Still, some pretty grueling preparation work is required to knock out the immune system of the patient and get the body prepared for receiving a new organ.

The three children given the kidney transplants in this way have an extremely rare genetic disease called Schimke immuno-osseous dysplasia (SIOD), which restricts the body’s ability to fight off infection and can lead to kidney failure.

“This remarkable experience underscores the potential of combined or sequential hematopoietic stem-cell transplantation and kidney transplantation to correct disorders of hematopoiesis and immunodeficiency and to induce tolerance of the kidney allograft,” write Thomas Spitzer and David Sachs from Massachusetts General Hospital in an accompanying editorial.

 

“SIOD is a rare disorder that involves immunodeficiency, which undoubtedly contributed to the achievement of successful donor HSCT engraftment.”

While SIOD and all of its complications remains something the children have to deal with, they are now all the owners of kidneys that are working as they should be. The transplants have been successful for at least 22 and 34 months, the researchers report.

“These were unique patients in which we had to do the stem cell transplant and a kidney transplant,” says Bertaina.

“They are doing everything: they go to school, they go on vacation, they are doing sports. They are having completely normal lives.”

The next steps are to expand the number of patients and the number of conditions that this could work for, since for now it’s only been demonstrated in patients with SIOD, making them especially suited to the procedure.

Of particular interest to the research team are patients who have already had a kidney transplant rejected by their bodies. That happens in up to half of all cases in children, leading to hypersensitized immune systems that most likely wouldn’t accept a second kidney through a normal transplant procedure.

Children will be the first to benefit, then the researchers are going to work up to older ages. Eventually, the technique could even be adapted to cover transplants of organs other than kidneys, but it’s going to take a while.

“That’s a challenge, but it’s not impossible,” says Bertaina.

The research has been published in the New England Journal of Medicine.

 

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Doctors pull off kidney transplant with no immune-suppressing drugs – The Hill

For patients who undergo kidney transplants, lifelong immunosuppression via medication is needed to ensure their immune systems do not reject the new organ. This complication is the most common reason patients require second transplants, while immunosuppressive drugs also carry their own increased risks of cancer, diabetes, and infections.

However, pediatricians at Stanford Medicine have now developed a method of carrying out kidney transplants in immuno-suppressed children using stem cells from parents, negating the need for these drugs.

Three children have undergone the procedure so far, all of whom had a rare genetic disease called Schimke immuno-osseous dysplasia, an immune disorder. The case series was published in the New England Journal of Medicine today. 

The patients first received bone marrow stem cells from parents, then, five to 10 months later, underwent a kidney transplant. 

“They’ve healed and recovered, and are doing things we never thought would be possible,” said parent Jessica Davenport in a statement, whose two children were among the three patients to undergo the procedure. 

One child received transplants from Jessica, and the other from their father. All patients no longer have Schimke immuno-osseous dysplasia and have been living for 22 to 34 months. 


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Although previous research into stem cell transplantation revealed a potential risk of graft-versus-host disease, the team at Stanford was able to refine the process by which the donor’s cells are processed, greatly reducing this risk.  

Patients requiring a kidney transplant are also often put on waiting lists until a donor match is found. But with this new method, safe transplantation between a donor and recipient whose immune systems are genetically half-matched, or parents, could significantly cut down wait times. 

In addition, organs donated under current protocols may only last for one or two decades before they need to be replaced. With the new procedure, the stem cell transplant effectively trains the body to not reject a subsequent donation, although it is unclear whether the kidneys will last a lifetime.

The protocol was approved by the FDA in May 2022. Researchers hope to expand their work into a wider patient population and investigate whether the method could be used for other solid organ transplants. 

However, they caution the procedure is not a cure for Schimke immuno-osseous dysplasia and since receiving transplants, patients have suffered adverse events including migraines and increased risk of stroke and cardiovascular problems.

“The Holy Grail of transplantation is immune tolerance,”  said Amit Tevar, surgical director of the Kidney and Pancreas Transplant Program at the University of Pittsburgh Medical Center in a statement. Tevar, who was not involved with the research, described the findings as “ground-breaking.” 

Published on Jun. 16, 2022



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Man’s toe pain was actually a massive cancerous kidney tumor

About five years ago, Richard Bernstein started experiencing a mysterious pain in his right toe.

“I went to my podiatrist,” the 62-year-old Montvale, NJ, resident told The Post. “I thought I had fractured the toe, but he couldn’t find anything wrong with it.”

Two years later, the pain crept into his ankle, so he saw a sports medicine doctor, who thought he had stenosis — a narrowing of the spaces within the spine that is sometimes treated with physical therapy.

His foot and ankle pain continued, mildly affecting his mobility. Then, in March of 2022, his right leg noticeably swelled up. He went to his general practitioner, who took an abdominal scan during his examination. The doctor immediately sent him to see Dr. Michael Grasso, the Director of Urology at Phelps Hospital, who delivered some unsettling news.

“He told me I had four days to live,” recalled Bernstein.

Richard Bernstein had toe pain for years but learned it was kidney cancer when he was told he had four days to live.
Bernstein’s CT scan of his torso, revealing his kidney tumor and tumor thrombus.
Courtesy of Northwell Health

The abdominal scan showed that the married father of one had a large cancerous kidney tumor and tumor thrombus that had grown up through the renal vein and filled the vena cava, which is the main vein draining into the heart.

Grasso had Bernstein admitted to Lenox Hill Hospital, so he, along with cardiothoracic surgeon Michael Hemli and vascular surgeon Alfio Carroccio, could perform a complex procedure to remove the tumor.

But preoperative testing revealed more pressing medical issues. Two of Bernstein’s main coronary arteries were 99% blocked, and his liver was failing because the malignancy was obstructing its function.

Urologist Dr. Michael Grasso, cardiothoracic surgeon Dr. Jonathan Hemli and vascular surgeon Alfio Carroccio operating on Bernstein in what was a 12-hour procedure.
Northwell Health

“He was walking a thin tightrope,” Grasso told The Post. “You have two situations that are life ending in a very short period of time, happening simultaneously.”

The trio of surgeons had to both remove the tumor and perform a bypass. The procedure took nearly 12 hours and was a medical symphony of sorts.

The kidney, tumor and surrounding fat along with the tumor thrombus removed from Bernstein.
Northwell Health

First, they needed to “control the circulation” by shutting off the flow of blood without harming the brain. To achieve this, they hooked Bernstein up to a lung and heart machine that cools the body to 18 degrees.

“We can’t just open the vena cava and scoop out the clot and close it again because the bleeding is torrential,” said Hemli. “We want to stop the circulation completely.”

While the body was undergoing the two-hour cooling process, Hemli and his team performed the coronary bypass. Then the trio went about removing the kidney and tumor.

“We opened the vena cava, and they opened the heart on the right side [and] freed up the tumor. I freed it up from below, pulled the snake out and they fixed the vena cava and started warming him up again,” said Grasso.

The “snake” — i.e. the tumor and tumor thrombus — to which he referred measured about a foot long and weighed nearly 2.5 pounds.

Bernstein with his wife Ann and daughter Emma.
Courtesy of Richard Bernstein

“I can’t say I fully recognized the complexity when I went in, even though Grasso told me it was complex. There was not much I could do about it and [that attitude] got me through,” said Bernstein.

According to Grasso, the pain was manifesting itself in Bernstein’s foot, ankle and leg because there was a venous blockage.

“The vena cava was being obstructed. There was pressure in his lower extremities,” said Grasso.

Kidney cancer notoriously presents late, when the tumor has progressed. The signs can be vague, like back pain, though urine in the blood is another indication.

Bernstein said he had a small lump on his chest that his doctor dismissed. However, he feels lucky.

“If my whole leg didn’t swell up, I would have dropped dead,” said Bernstein, who after the surgery was sedated for about three days. After a week, he left Lenox Hill to rehab at Phelps Hospital, where he built up his strength. He is now walking unaided and is slowly regaining the 30 pounds he lost.

The doctors believe they removed all of his cancer, so he doesn’t need to undergo any additional treatment. His focus now is on recovering from the intense surgery.

“I’m still suffering from a fog a bit,” said Bernstein, who now tells people experiencing vague symptoms to not disregard them.

“There was no serious pain at all. My advice is if something is wrong and they can’t find it, don’t give up looking,” he said. “Trust your feelings about your own body.”

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Almost 800,000 Americans are living with end-stage kidney disease

The kidneys — two fist-sized organs in your back, just below your rib cage — filter your blood, removing excess fluids and waste. Other diseases, conditions or injuries — most often diabetes or hypertension — can also damage the kidneys, leading to a gradual loss of kidney function, known as chronic kidney disease. Over time, this can advance to kidney failure or end-stage disease, meaning the kidneys can no longer work as they should. As a result, dangerous levels of fluids and wastes can build up in the body. The only available treatments are dialysis or a kidney transplant.

Dialysis most often involves connecting to an artificial kidney machine to do the filtering (called hemodialysis), but another type of dialysis (peritoneal dialysis) uses the person’s abdominal lining to filter the blood inside the body. As for kidney transplants, nearly 23,000 were done in the United States in 2020, and as of March, nearly 90,000 people were on a waiting list for a kidney transplant.

About 1 in 7 U.S. adults (about 37 million people) have chronic kidney disease, according to the National Institute of Diabetes and Digestive and Kidney Diseases. Most people, as many as 90 percent, the agency says, however, are not aware they have kidney disease when it is in its early stages as symptoms often do not develop until the disease becomes more advanced.

This article is part of The Post’s “Big Number” series, which takes a brief look at the statistical aspect of health issues. Additional information and relevant research are available through the hyperlinks.

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World Kidney Day 2022: 6 amazing foods for your kidneys | Health

World Kidney Day 2022: Taking care of kidneys and improving their function requires a dedicated effort. Staying hydrated and eating a healthy diet free of sodium and salt can support kidney health in a big way. If you are someone who’s addicted to junk food, it’s high time you get rid of these faulty eating habits, as it can play havoc with your kidneys. Homemade food is the best choice for those who are undergoing treatment for kidney disease as it can regular your sodium levels.  (Also read: World Kidney Day 2022: Diabetes can damage your kidneys; watch out for warning signs)

“There are simple things that we can do to improve kidney health. Start with staying hydrated. Regular and consistent water intake improves kidney functions. It helps clear sodium and toxins from the kidney and lowers the risk of chronic kidney diseases. Be mindful about the quantity of the water intake as both under and overhydration can deteriorate kidney health. It is advisable to drink as per your health requirements and lifestyle,” says Luke Coutinho, wellness expert and co-founder of You Care Lifestyle.

Coutinho advises people to limit their salt intake and do away with processed foods as even one serving can contain a lot of refined salt and sodium that can put pressure on the kidney to process and flush it out of the body.

“A kidney-friendly diet should be low in sodium, cholesterol, and fat. It should rather focus on naturally grown fruits, vegetables, along with low-fat dairy ad lean meats. Also, be mindful of protein intake. Having too much protein may cause waste to build in the blood, and the kidneys then have to work harder to remove it,” says Dr. Siddhant Bhargava, Fitness and Nutritional Scientist, Co-Founder- Food Darzee.

Here are top foods for your kidney suggested by Coutinho and Dr Bhargava.

1. Cabbage: Low in sodium, cabbage is a good source of vitamin K, C, B6. It also contains fibre and folic acid and has abundant phytochemicals to help keep kidneys healthy and foster cardiovascular health. This cruciferous vegetable tastes best in soups, salads, or even alone with just salt and pepper.

Cabbage(Pixabay)

2. Coriander seeds: Coriander seeds improve kidney functioning. It works as a diuretic and helps flush toxins from the body. They are also effective in treating urinary tract infections as they improve the filtration rate of kidneys enabling quicker urine generation.

3. Cranberry: Unsweetened cranberry, rich in flavonoids and other polyphenols having antioxidant, and anti-inflammatory properties is a great food for handling and managing UTIs as recurrent and chronic UTIs can harm kidneys in the long run.

Cranberry(Pixabay)

4. Cauliflower: Cauliflower is one of the most important vegetables for the kidney. Just one cup of cooked cauliflower contains 19 mg of sodium, 176 mg of potassium, and 40 mg of phosphorus, ingredients which are most vital to help maintain kidney function. Rich in vitamin C, K, and B and a good source of many nutrients, cauliflower is also full of anti-inflammatory compounds and is an excellent source of fibre. Savour some cauliflowers either raw, steamed, or in soup. One can also, mash cauliflower and have it as a low potassium side dish. 

5. Nettle leaf: Nettle leaf infusions are a natural way to treat kidney problems, urinary tract infections, and kidney stones. A power diuretic and depurative, nettle leaf is helpful in enhancing blood purification, reducing creatinine levels, improving urination, and controlling inflammation of the kidneys.

Nettle leaf(Pixabay)

6. Berries: These delicious berries like cranberries, strawberries, blueberries, raspberries are high in nutrition and multiple vitamins. They are a great source of antioxidant phytonutrients that reduce inflammation in the body and help prevent cell damage to aid good kidney health. There are infinite ways in which berries can be consumed. Eat them with cereal, smoothies, salads, or slices and serve. Be creative with them. 

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Rep. Jim Hagedorn (R-Minn.) dies at 59 after battle with kidney cancer

“Jim loved our country and loved representing the people of southern Minnesota,” she said. “Every moment of every day he lived his dream by serving others. There was no stronger conservative in our state than my husband; and it showed in how he voted, led and fought for our country.”

Hagedorn announced he had a kidney removed along with cancerous tissues surrounding the kidney, the station reported. In July, he announced a reoccurrence of his kidney cancer.

Hagedorn’s father, Tom Hagedorn, also served in Congress, representing a Minnesota district from 1975 to 1983.

The younger Hagedorn served on the Agriculture and Small Business Committees.

Following the news of Hagedorn’s death, lawmakers from both parties offered condolences.

Hagedorn “bravely endured the personal challenge of cancer treatment with dignity and grace while serving our country and his constituents,” Rep. Betty McCollum (D-Minn.) said in a statement. “Despite our policy differences on many issues, Jim and I were united in the common goal of achieving greater opportunities for future generations of Minnesotans.”

Sen. Amy Klobuchar (D-Minn.) described Hagedorn as “a fighter for his constituents and a friend to so many, including me.”

“Through his battle against cancer, he showed a level of determination that should inspire us all,” she said on Twitter.

House Minority Leader Kevin McCarthy (R-Calif.) recalled Hagedorn’s long ties to Congress.

“Starting as a congressional staffer and then becoming a member, Jim focused on supporting and strengthening the agriculture community that is the foundation for his Southern Minnesota community,” McCarthy said in a statement. “Jim lived and breathed the spirit of determined optimism that is embedded in the American way of life all the way till the end.”

House Minority Whip Steve Scalise (R-La.) tweeted that Hagedorn was “a strong conservative with a great sense of humor who loved this country & worked tirelessly for the people he represented.”

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